Resources for Clinicians
Increased Participation
The aftermath of a traumatic brain injury leads to physical, cognitive, emotional and psychosocial deficits that can limit or restrict one’s activity and participation. Changes to psychosocial functioning after a TBI can be challenging for a person with a brain injury, their family and friends. Commonly, difficulties are experienced in the transition back to home, making new and maintaining relationships, and vocational opportunities. Deficits in psychosocial functioning are a major target for research and rehabilitation following a TBI. Increasing participation for a person with a TBI can help to increase the efficacy of remediation of impaired skills.
General Overview
Meet the Expert: Meaningful Occupation and Brain Injury- Professor Jennifer Fleming from the University of Queensland provides an overview of her research and its aims within the field of meaningful occupation as it relates to brain injury.
Expert Advice for Patients and Families Affected by Brain Injury - Professor Jennifer Fleming from the University of Queensland provides expert advice for patients and families affected by brain injury.
Toolkits for Facilitating Participation – TBI Staff Training have developed toolkits for practitioners who are working with people with traumatic brain injury (TBI). The content on the site uses materials developed by a wide range of practitioners working in brain injury units in NSW, Australia. People with brain injuries and their family members have also generously shared their stories of living with brain injury.
Introduction to TBI – TBI Staff Training in conjunction with The Brain Injury Rehabilitation Unit, Liverpool Hospital Sydney has put together a workshop kit that provides information about the nature of traumatic brain injury (TBI) and the impact it can have on a person’s life as well as on the lives of their family.
Promoting Skills for Independence- TBI Staff Training in conjunction with The Brain Injury Rehabilitation Unit, Liverpool Hospital Sydney has put together a workshop kit for support workers who provide direct care and assistance to people who have had traumatic brain injury (TBI). It offers practical strategies that can help individuals with a TBI to increase their independence.
Relationships After Traumatic Brain Injury – The Model Systems Knowledge Translation Centre have put together a factsheet on relationship changes that can occur after a brain injury. It covers the common changes as well as suggestions for ways that couples can address some of the more difficult changes they are experiencing.
Sexuality After Traumatic Brain Injury - The Model Systems Knowledge Translation Centre have developed a factsheet on common sexual problems after TBI and ways to improve sexual functioning.
Sexuality and TBI: Issues and Strategies - TBI Staff Training in conjunction with The Brain Injury Rehabilitation Unit, Liverpool Hospital Sydney has put together a workshop kit to increase awareness of the impact of traumatic brain injury (TBI) on people’s sexuality, and increase participants’ awareness of their own attitudes towards sexuality. It also offers participants useful strategies to enhance the sexual lives of clients with TBI, and to manage sexually inappropriate behaviour.
Returning to Work Following a TBI - BrainStreams.ca provides some resources to guide an appropriate and successful return to work after a traumatic brain injury.
Driving After Traumatic Brain Injury- A brain injury can affect the skills needed to drive safely. If and when an injured person may safely return to driving should be addressed early in recovery. The injured person, family members, and health professionals should all be included in this important decision. Factors such as how a TBI can affect the ability to drive, driving evaluations, legal considerations and vehicle modifications are discussed.
Returning to School After Traumatic Brain Injury – The Model Systems Knowledge Translation Centre discuss returning to school following a TBI including information such as how school can support a return and managing challenging behavior.
Understanding Brain Trauma – Moving Ahead Chief Investigators, Professor Skye McDonald (UNSW) and Professor Jennie Ponsford (Monash University), provide expertise regarding the mechanisms and rehabilitation that arise after a brain injury to Catalyst reporter, Dr Maryanne Demasi.
Understanding and managing traumatic brain injury – Moving Ahead Chief Investigator, Professor Jennie Ponsford (Monash University), provides a thorough overview of TBI, including – the mechanisms of injury, psychosocial outcomes, rehabilitation following TBI, future directions for brain injury research and more.
Working with people with TBI- Sponsored by the Agency for Clinical Innovation (ACI) in NSW, Australia, the Brain Injury Rehabilitation Network exists to improve rehabilitation outcomes for adults, young people and children following traumatic brain injury (TBI). They do this by supporting clinicians and consumers to develop and implement best practice treatment across inpatient, transitional and community settings through providing self-study modules, toolkits, presenter modules and workplace learning resources.
The Caregivers Journey – The Journey Home website presents six video sessions with Tracy McGrew, a social worker, who guides caregivers of patients with traumatic brain injury through the journey ahead, providing them with challenges, tips and ways to advocate for their loved ones.
Assessments & Remediation
Prospective Memory: Translating Research into Clinical Practice - Professor Jennifer Fleming from the University of Queensland shares how her research in prospective memory, as it relates to brain injury, is informing clinical practice.
The Comprehensive Assessment of Prospective Memory (CAPM) – The CAPM was designed by David Shum and Moving Ahead Chief Investigator, Professor Jennifer Fleming, to assist in the clinical evaluation of prospective memory function among individuals with acquired brain injury, and to assist in the evaluation of rehabilitation programs designed to serve these people. Prospective memory is defined as “the process and skills required to support the fulfilment of an intention to perform a specific action in the future” (Ellis & Kvavilashvili, 2000, p. S1). The CAPM is a self-report questionnaire which focuses on prospective memory and has three scales to collect comprehensive data on the process of prospective remembering.
PEPA Program - Learn why Chief Investigator Professor Robyn Tate and her research team are using the Program for Engagement, Participation & Activities (PEPA) to target participation in every day activities for people with a traumatic brain injury.
Making the Most of Your Memory: An everyday memory skills program - This treatment manual provides step by step instructions for a 6-session program to help people develop practical knowledge and skills to ameliorate their everyday memory difficulties. The training program was developed based on the neuropsychological literature for memory rehabilitation, particularly focusing on compensatory memory strategies. It is also based upon training approaches and strategies from the fields of clinical psychology, experimental learning and cognitive neurosciences. The manual is comprehensive, clearly structured and sufficiently detailed for clinical use. It has been validated across a number of studies involving clinical trials (Miller & Radford, 2014; Radford et al., 2011, 2012; Thayer et al., 2015).The program was developed to meet the needs and concerns of patients with various non-progressive neurological disorders, including traumatic brain injury, stroke and epilepsy. However, this program might easily be adapted for other groups with everyday memory concerns.
Meet the Expert: Methodology and Outcome Measures for Brain Injury Research - Professor Robyn Tate from the University of Sydney provides an overview of her research and its aims within the field of methodology and outcome measures as it relates to brain injury research.
Measuring Outcomes from TBI - Find basic information on over 100 different instruments that measure outcomes in Global Function; Behavioural Function; Family Environment; Health Related Quality of Life; Social Participation; Language and Communication; Measures of Self; Neuropsychology; Psychological Status; and Social Cognition. Information includes reliability, validity, sensitivity to change, advantages and disadvantages. This is a joint project from the team at the Moving Ahead Centre for Research Excellence in Brain Recovery, in collaboration with expert researchers and clinicians experienced in traumatic brain injury from around the world.
Online Lecture Series: Understanding brain injury and how to work with people with ABI– Sue Sloan is a registered Occupational Therapist and Clinical Neuropsychologist. She has worked in brain injury rehabilitation for over 40 years and has developed a strong interest in long-term rehabilitation where individuals experience complex cognitive-behavioural problems. Sue has published a series of six online lectures exploring brain injury and how to work with people who have acquired brain injury.
ASSBI – Since 1978, Australasian Society for the Study of Brain Impairment (ASSBI) has provided a unique forum for multi-disciplinary research and clinical practice for Australasian professionals working in brain impairment by offering annual continuing education opportunities through training, workshops, webinars and resources including assessments, treatments and books.
Lash & Associates Publishing / Training Inc. – This publishing company is the leading source of information on brain injury in children, adolescents, adults and veterans for over 20 years. They provide practical and informative books, tip cards, manuals, tool kits, attention training, and cognitive rehabilitation programs on traumatic and acquired brain injury, concussion, and post-traumatic stress disorder (PTSD). Written for survivors, veterans, families, clinicians, therapists, educators, advocates, and caregivers, their products can be used in hospitals, rehabilitation programs, community agencies, schools, private practice, and home.
Publications
2016
Doig, E., Prescott, S., Fleming, J., Cornwell, P., & Kuipers, P. (2016). Reliability of the Client-Centeredness of Goal Setting (C-COGS) Scale in Acquired Brain Injury Rehabilitation. American Journal of Occupational Therapy, 70(4), 7004290010p1-7004290010p8.
DOI: 10.5014/ajot.2016.017046
Douglas, J.M., Bracy, C.A., & Snow, P.C. (2016). Return to Work and Social Communication Ability Following Severe Traumatic Brain Injury. Journal of Speech, Language, and Hearing Research, 59(3), 511-520. DOI: 10.1044/2015_JSLHR-L-15-0025
Dymowski, A.R., Ponsford, J.L., & Willmott, C. (2016). Cognitive training approaches to remediate attention and executive dysfunction after traumatic brain injury: A single-case series. Neuropsychological Rehabilitation, 26(5-6), 866-894. DOI: 10.1080/09602011.2015.1102746
Finch, E., French, A., Ou, R.J. & Fleming, J. (2016). Participation in communication activities following traumatic brain injury: A time use diary study. Brain Injury, 30(7), 883-890.
DOI: 10.3109/02699052.2016.1146959
Gabbe, B.J., Simpson, P.M., Harrison, J.E., Lyons, R.A., Ameritunga, S., Ponsford, J., Fitzgerald, M., Judson, R., Collie, A., & Cameron, P.A. (2016). Return to Work and Functional Outcomes After Major Trauma: Who Recovers, When, and How Well?. Annals of Surgery, 263(4), 623-32.
DOI: 10.1097/SLA.0000000000001564
Hassett, L., van den Berg, M., Lindley, R., Crotty, M., McCluskey, A., van der Ploeg, H.P., Smith, S.T., Schurr, K., Killington, M., Bongers, B., Howard, K., Heritier, S., Togher, L., Hackett, M., Treacy, D., Dorsch, S., Wong, S., Scrivener, K., Chagpar, S., Weber, H., Pearson, R., Sherrington, C. (2016). Effect of affordable technology on physical activity levels and mobility outcomes in rehabilitation: a protocol for the Activity and MObility UsiNg Technology (AMOUNT) rehabilitation trial. BMJ Open, 6, e012074. DOI: 10.1136/bmjopen-2016-012074
Liang, P., Liddle, J., Fleming J., & Gustafsson, L. (2016). Family members’ narratives of lifespace: Mapping changes before and after a brain injury causing driving disruption. Australian Occupational Therapy Journal, 63(3), 164-174. DOI: 10.1111/1440-1630.12258
Paterson, F., Fleming, J., & Doig, E. (2016). Group-based delivery of interventions in traumatic brain injury rehabilitation: a scoping review. Disability and Rehabilitation, 38(20), 1961-1986.
DOI: 10.3109/09638288.2015.1111436
Ross, P., Ponsford, J.L., Di Stefano, M., Charlton, J., & Spitz, G. (2016). On the road again after traumatic brain injury: driver safety and behaviour following on-road assessment and rehabilitation. Disability and Rehabilitation, 38(10), 994-1005.
DOI: 10.3109/09638288.2015.1074293
2015
Brunner, M., Hemsley, B., Palmer, S., Dann, S., & Togher, L. (2015). Review of the literature on the use of social media by people with traumatic brain injury (TBI). Disability and Rehabilitation, 37(17), 1511-1521. DOI: 10.3109/09638288.2015.1045992
Dahm, J. & Ponsford, J. (2015). Predictors of global functioning and employment 10 years following traumatic brain injury compared with orthopaedic injury. Brain Injury, 29(13-14), 1539-1546. DOI: 10.3109/02699052.2015.1075141
Doig, E., Prescott, S., Fleming, J., Cornwell, P., & Kuipers, P. (2015). Development and construct validation of the Client-Centredness of Goal Setting (C-COGS) scale. Scandinavian Journal of Occupational Therapy, 22(4), 302-310. DOI: 10.3109/11038128.2015.1017530
Gould, K.R. & Ponsford, J.L. (2015). A longitudinal examination of positive changes in quality-of-life after traumatic brain injury. Brain Injury, 29(3), 283-290. DOI: 10.3109/02699052.2014.974671
Prescott, S., Fleming, J., & Doig, E. (2015). Goal setting approaches and principles used in rehabilitation for people with acquired brain injury: A systematic scoping review. Brain Injury, 29(13-14), 1515-1529. DOI: 10.3109/02699052.2015.1075152
Ross, P.E., Ponsford, J.L., Di Stefano, M., & Spitz, G. (2015). Predictors of on-road driver performance following traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 96(3), 440-446. DOI: 10.1016/j.apmr.2014.09.027
Schmidt, J., Fleming, J., Ownsworth, T., & Lannin, N.A. (2015). Maintenance of treatment effects of an occupation-based intervention with video feedback for adults with TBI. NeuroRehabilitation, 36(2), 175-186. DOI: 10.3233/NRE-151205
Schofield, P.W., Malacova, E., Preen, D.B., D’Este, C., Tate, R., Reekie, J., Wand, H., Butler, T. (2015). Does Traumatic Brain Injury Lead to Criminality? A Whole-Population Retrospective Cohort Study Using Linked Data. PLoS One, 10(7), e0132558. DOI: 10.1371/journal.pone.0132558
Tam, S., McKay, A., Sloan, S., & Ponsford, J. (2015). The experience of challenging behaviours following severe TBI: A family perspective. Brain Injury, 29(7-8), 813-821.
DOI: 10.3109/02699052.2015.1005134
Tse, T., Lentin, P., Douglas, J., & Carey, L. (2015). Participation: What is it and why is it important in rehabilitation? International Journal of Stroke, 10, 82.
Willmott, C., Spitz, G., & Ponsford, J.L. (2015). Predictors of productivity outcomes for secondary and tertiary students following traumatic brain injury. Brain Injury, 29(7-8), 929-936.
DOI: 10.3109/02699052.2015.1022882
2014
Fleming, J., Liddle, J., Nalder E., Weir, N., & Cornwell, P. (2014). Return to driving in the first 6 months of community integration after acquired brain injury. NeuroRehabilitation, 34(1), 157-166.
DOI: 10.3233/NRE-131012
Fleming, J., Nalder, E., Alves-Stein, S., & Cornwell, P. (2014). The effect of environmental barriers on community integration for individuals with moderate to severe traumatic brain injury. Journal of Head Trauma Rehabilitation, 29(2), 125-135. DOI: 10.1097/HTR.0b013e318286545d
Grant, M. & Ponsford, J. (2014). Goal Attainment Scaling in brain injury rehabilitation: Strengths, limitations and recommendations for future applications. Neuropsychological Rehabilitation, 24(5), 661-667. DOI: 10.1080/09602011.2014.901228
Gustafsson, L, Fleming, J., Cornwell, P., Worrall, L., & Brauer, S. (2014). STRENGTH and the Health Care Team: Changing Interprofessional and Client-Centred Practices. Topics in Stroke Rehabilitation, 21(5), 413-420. DOI: 10.1310/tsr2105-413
Huang, J., Fleming, J., Pomery, N.L., O’Gorman, J.G., Chan, R.C., & Shum, D.H. (2014). Perceived importance of prospective memory failures in adults with traumatic brain injury. Neuropsychological Rehabilitation, 24(1), 61-70. DOI: 10.1080/09602011.2013.854723
Lannin, N., Carr, B., Allaous, J., Mackenzie, B., Falcon, A., & Tate, R. (2014). A randomized controlled trial of the effectiveness of handheld computers for improving everyday memory functioning in patients with memory impairments after acquired brain injury. Clinical Rehabilitation, 28(5), 470-481. DOI: 10.1177/0269215513512216
Liddle, J., Hayes, R., Gustafsson, L., & Fleming, J. (2014). Managing driving issues after acquired brain injury: strategies used by health professionals. Australian Occupational Therapy Journal, 61(4), 215-223. DOI: 10.1111/1440-1630.12119
Ponsford, J.L. & Spitz, G. (2014). Stability of employment over the first 3 years following traumatic brain injury. Journal of Head Trauma Rehabilitation, 30(3), 1-11.
DOI: 10.1097/HTR.0000000000000033
Tate, R., Wakim, D., & Genders, M. (2014). A systematic review of the efficacy of community-based, leisure/social activity programs for people with traumatic brain injury. Brain Impairment, 15(3), 157-176. DOI: 10.1017/BrImp.2014.28
Willmott, C., Ponsford, J., Downing, M., & Carty, M. (2014). Frequency and quality of return to study following traumatic brain injury. Journal of Head Trauma Rehabilitation, 29(3), 248-256. DOI: 10.1097/HTR.0000000000000014
2013
Downing, M.G., Stolwyk, R., & Ponsford, J.L. (2013). Sexual changes in individuals with traumatic brain injury: a control comparison. Journal of Head Trauma Rehabilitation, 28(3), 171-178. DOI: 10.1097/HTR.0b013e31828b4f63
Kelly, M., McDonald, S., & Kellett, D. (2013). The psychological effects of ostracism following traumatic brain injury. Brain Injury, 27(13-14), 1676-1684
DOI: 10.3109/02699052.2013.834381
Nalder, E., Fleming, J., Cornwell, P., Shields, C., & Foster, M. (2013). Reflections on life: experiences of individuals with brain injury during the transition from hospital to home. Brain Injury, 27(11), 1294-1303. DOI: 10.3109/02699052.2013.823560
Ponsford, J.L., Downing, M.G., & Stolwyk, R. (2013). Factors associated with sexuality following traumatic brain injury. Journal of Head Trauma Rehabilitation, 28(3), 195-201.
DOI: 10.1097/HTR.0b013e31828b4f7b
Rietdijk, R., Simpson, G., Togher, L., Power, E., & Gillett, L. (2013). An exploratory prospective study of the association between communication skills and employment outcomes after severe traumatic brain injury. Brain Injury, 27(7-8), 812-818.
DOI: 10.3109/02699052.2013.775491
2012
Grant, M.K., Ponsford, J.L., & Bennett, P.C. (2012). The application of goal management training to aspects of financial management in individuals with traumatic brain injury. Neuropsychological Rehabilitation, 22(6), 852-873. DOI: 10.1080/09602011.2012.693455
Gustafsson, L. & Fleming, J. (2012). Transition to community living after acquired brain injury. Brain Impairment, 13(1), 1-3. DOI: 10.1017/BrImp.2012.15
Liddle, J., Fleming, J., McKenna, K., Turpin, M., Whitelaw, P., & Allen, S. (2012). Adjustment to loss of the driving role following traumatic brain injury: A qualitative exploration with key stakeholders. Australian Occupational Therapy Journal, 59(1), 79-88.
DOI: 10.1111/j.1440-1630.2011.00978.x
Nalder, E., Fleming, J., Cornwell, P., Foster, M., & Haines, T. (2012). Factors associated with the occurrence of sentinel events during transition from hospital to home individuals with traumatic brain injury. Journal of Rehabilitation Medicine, 44(10), 837-844.
DOI: 10.2340/16501977-1033
Nalder, E., Fleming, J., Foster, M., Cornwell, P., Shields, C., & Khan, A. (2012). Identifying Factors Associated With Perceived Success in the Transition From Hospital to Home After Brain Injury. Journal of Head Trauma Rehabilitation 27(2), 143–153.
DOI: 10.1097/HTR.0b013e3182168fb1
Evidence-Based Practice
PsycBITE™ is a joint initiative between Professor Robyn Tate (University of Sydney), Dr Michael Perdices (Royal North Shore Hospital), Professor Leanne Togher and Dr Anne Moseley (University of Sydney) and Professor Skye McDonald (UNSW). PsycBITE™ is a free database that includes all trials that have been published that evaluate treatment for any behavioural, communication, cognitive or psychological disorders arising from any form of acquired brain impairment in children (above the age of 5 years) and adults. As of July 2016 there are over 5000 treatment studies listed on PsycBITE™ with prospective searches being conducted on a regular basis. To enter the database click www.psycbite.com.
Click here to find out why PsycBITE™ is a useful resource for clinicians from Moving Ahead Chief Investigator, Professor Robyn Tate (University of Sydney).
The Risk of Bias in N-of-1 Trials (RoBiNT) Scale: An Expanded Manual for the Critical Appraisal of Single-Case Reports - The PsycBITE Group has developed the RoBiNT Scale that makes it possible to judge how well a single-case experimental study has been conducted. This scale not only helps readers judge how good a study is, but it also provides clear guidance in how to conduct a good study. The manual provides examples of good, mixed and poor studies, focusing on fifteen different aspects of a study, for example, whether the study used an acceptable design, whether raw data was provided, whether assessments were conducted in a non-biased fashion and how data was analysed.
Why is it important for clinicians to use evidence-based research in practice? - Professor Robyn Tate from the University of Sydney answers why it's important for clinicians to use evidence-based research in practice.
Value of Single-Case Research Design in Brain Injury Rehabilitation - Professor Robyn Tate from the University of Sydney discusses the value of single-case research design in brain injury rehabilitation.
Translating Single-Case Research into Practice: The Example of "Alan" - Professor Robyn Tate from the University of Sydney provides an example of how to translate single-case research into clinical practice using the example of "Alan".
The Evidence-Based Review of Moderate To Severe Acquired Brain Injury (ERABI) is a joint project to develop an evidence-based review of the literature for rehabilitation or rehabilitation-related interventions for acquired brain injury (ABI). The principle of the ERABI is to improve the quality of ABI rehabilitation by synthesizing the current literature into a utilizable format and laying the foundation for effective knowledge transfer to improve programs and services.
The Speech Pathology Database for Best Interventions and Treatment Efficacy, known as speechBITE, is a free searchable database on the internet designed to assist speech pathologists in evidence-based clinical decision making. Launched in 2008, speechBITE is a joint initiative between the University of Sydney and Speech Pathology Australia led by Chief Investigator Professor Leanne Togher. speechBITE has more than 3000 references from peer-reviewed published journals on treatment for communication and or/swallowing disorders across the lifespan. Methodological ratings for randomised controlled trials, non-randomised controlled trials and single-case experimental designs are also available on speechBITE. To enter the database click www.speechbite.com.
OTseeker is a database that contains abstracts of systematic reviews, randomised controlled trials and other resources relevant to occupational therapy interventions. Most trials have been critically appraised for their validity and interpretability. In one database, OTseeker provides fast and easy access to information from a wide range of sources to inform occupational therapy.
PEDro is the Physiotherapy Evidence Database. PEDro is a free database of over 37,000 randomised trials, systematic reviews and clinical practice guidelines in physiotherapy. For each trial, review or guideline, PEDro provides the citation details, the abstract and a link to the full text, where possible. All trials on PEDro are independently assessed for quality. These quality ratings are used to quickly guide users to trials that are more likely to be valid and to contain sufficient information to guide clinical practice. PEDro is produced by Musculoskeletal Health Sydney, School of Public Health at the University of Sydney and is hosted by Neuroscience Research Australia (NeuRA).
External Resources
-
- Understanding TBI - The University of Washington MSKTC and the TBI Model Systems in the United States developed a four-part series designed to help consumers understand traumatic brain injury.
- TBI InfoComics - The TBI InfoComics are a project of the University of Washington Traumatic Brain Injury Model System study (TBIMS) in the USA, which began in 2013. The TBI InfoComics were created to educate survivors of TBI, their families and/or caregivers, and healthcare providers about common symptoms of TBI and how to manage them.
- Clinical Neuropsychologist, Dr Glen Johnson from Michigan, USA, provides a clear understanding of what happens after a head injury and discusses commonly asked questions in his online book titled Traumatic Brain Injury Survival Guide. Dr Johnson wrote this book with the goal of better preparing the head injured person and family for the recovery that lies ahead.
- Understanding Brain Injury: A Guide for the Family - The Mayo Clinic in the USA developed this booklet contains information on the human brain, causes of acquired brain injury, the recovery process, and behavior, communication and physical changes after brain injury. It also outlines examples of stressful behaviours and situations that people with brain injury may experience.
- Brain Injury Australia - This acquired brain injury (ABI) advocacy body works at a national level to ensure that all people living with ABI have access to the support and resources they need to optimise their social and economic participation in the community.
- Synapse - Formerly known as the Brain Injury Association of Queensland, Synapse seeks to be the lead community-based organisation in QLD Australia providing support, advocacy and information to people with an ABI, their families, and to individuals or organisations that share the ABI experience in any way and for any reason.
- Liverpool Brain Injury Rehabilitation Unit - Located at Liverpool Hospital in NSW, Australia, the LBIRU has established a national and international reputation for outstanding research in the rehabilitation of people with TBI. This Unit not only provides rehabilitation services for people with TBI, but also provides various resources for people living with a brain injury and their families.
- BrainLink - Located in Victoria, Australia, this service is dedicated to improving the quality of life of people affected by brain conditions by providing information and support to those affected and their families. BrainLink has a library that offers books, articles and videos about children and young people with ABI and their families.
- The International Brain Injury Association - IBIA is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.
- Brain Injury Association of America - BIAA is the United States of America’s oldest and largest nationwide brain injury advocacy organization. Their mission is to advance awareness, research, treatment and education and to improve the quality of life for all individuals impacted by brain injury. Through advocacy, they help provide hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them.
- BrainLine - This national multimedia project is a service of WETA, the public TV and radio station in Washington, DC. USA. BrainLine offers information and resources about preventing, treating, and living with TBI, including a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury.
- Model Systems Knowledge Translation Centre (MSKTC) - The MSKTC is a national center in the USA that helps facilitate the knowledge translation process to make research meaningful to those with spinal cord injury (SCI), traumatic brain injury (TBI) and burn injury (Burn).
- The Journey Home - The Centre of Excellence for Medical Multimedia’s Traumatic Brain Injury (TBI) webiste provides an informative and sensitive exploration of TBI, including information for patients, family members, and caregivers. Topics include types and symptoms of brain injury, TBI treatment and recovery, and helpful insights about the potential long-term effects of brain injury. Animation is used to help patients clearly understand the brain, and the results of injuries to different parts of the brain. Survivors and their caregivers share courageous stories about their own experiences, providing down-to-earth facts along with inspiration and hope.
- Headway - the brain injury assocation - Headway is the UK-wide charity that works to improve life after brain injury. Through its network of more than 125 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields.
- Understanding TBI - The University of Washington MSKTC and the TBI Model Systems in the United States developed a four-part series designed to help consumers understand traumatic brain injury.